About NKH

NKH (Nonketotic Hyperglycinemia) is a rare and terminal metabolic disorder in children. It’s rare, there are less than 40 kids living with NKH in the UK. At this point, there is no effective treatment. We’re raising funds to change that.

We’ve partnered with Joseph’s Goal (UK’s only NKH charity) to raise funds for the NKH Research done by Dr Nick Greene as part of UCL. He’s currently the world leader in NKH research, and we’re determined to give the research team the best shot at finding a cure for NKH.

For more on NKH, please visit www.foundationnkh.org.

About #TeamMikaere

Mikaere (or Kai, if it’s easier to pronounce) is a toddler with NKH. Because NKH is terminal and treatment options are limited every day is precious. His family are doing everything they can to give Mikaere the best quality of life they can.

His parents are friends with Sam (the Manager of Enterprise Business Reps at Sales Force), who introduced us to Yasmin within Ability Force. We were sure that collectively we could raise funds for NKH Research, and the fun run was born!

You can follow their story at www.teammikaere.com, on ig @teammikaere.com or at facebook.com/teammikaere

When do registrations open and close?

Registrations are now open. Online entries will close at 4:00pm Friday 20 September 2019. Please note that availability is limited so don’t delay your entry.

Who can participate?

The NKH Fun Run is suitable for both competitive runners and amateurs alike.  Jog at your own pace, it’s not always about the time; it can be about how much fun you’re having. Walkers are welcome too.

Side note: unfortunately there are stairs at Barnes Bridge, not suitable for prams or wheelchairs. Apologies for the lack of inclusivity – we’re hoping to find a more inclusive route for next time!

Are there any age restrictions?

The NKH Charity Fun Run is open to all ages. However all entrants under the age of 12 must be accompanied by a registered parent or guardian for the entire duration of the event and the accompanying adult takes full responsibility for the safety of the entrant under 12.

Are there any age restrictions?

The NKH Charity Fun Run is open to all ages. However all entrants under the age of 12 must be accompanied by a registered parent or guardian for the entire duration of the event and the accompanying adult takes full responsibility for the safety of the entrant under 12.

What is the best way to get there?

There is little to no street parking, so would encourage everyone to make use of public transport.

Tube:

Putney Bridge (District Line).  Please note this station doesn’t have a lift.

National Rail:

Putney. Fifteen minutes from London Waterloo. Bishops Park is a 20 minute walk down Putney High Street and across Putney Bridge. The 14, 424 and 430 buses taken from across the street from ‘Putney Station’ stop on Putney Bridge at the ‘Putney Bridge Station / Gonville Street’ stop.

Buses 74, 220 and 430 stop on Fulham Palace Road at the ‘Bishop’s Park Road’ stop. The Palace is a five minute walk down Bishop’s Avenue.

Buses:

Buses 14, 22, 39, 74, 85, 93, 220, 265, 424 and 430 stop on Putney Bridge at the ‘Putney Bridge Station / Gonville Street’ or ‘St Mary’s / Putney Pier’ stops.

Is there a gear drop area?

Yes, there will be a Gear Drop area on the day, near the race start area. £2 per item. Participants are strongly encouraged to consider what they leave at gear drop, and only leave item’s that are essential. We take no responsibility for lost property so valuable items should not be left.

Note that gear drop will close at 10:00am. After this time, participants must carry their items with them on the course.

What do I get for my ticket price?

An entry to either the 12Km fun run, a tshirt, a water bottle, a medal on completion, with much cheering and the rosy joy of running for charity, knowing you’re giving children with NKH a chance at an effective treatment.

Can I enter multiple people during the registration process?

Absolutely! The more the merrier! Side note: each individual will need to fundraise the requested amount.

Can I enter on the day?

Unfortunately not! Sorry hey. Make sure you enter by the 20th of September 2019.

What are the t-shirts like?

Oh la! They’re pretty lush, unisex wicking t-shirts. It’s 140 gsm Neoteric™ textured fabric with inherent wickability (100% polyester)  with UPF 30+ UV protection.

Relaxed fit, self fabric collar, taped neck, twin needle stitching and WRAP Certified Production.

Tshirts will be shipped to you directly with the address provided at checkout.

How do I collect donations?

For those of you who opted to fundraise, we request that each participant fundraise £100 towards Joseph’s Goal and NKH Research.  Donations can be made at www.nkhcharityrun.com or to the paypal account here: https://paypal.me/pools/c/8g9EO4KkDY

To clarify, we’re collecting donations via paypal so they can be matched (!) by our sponsors. All donations (in full!) will be deposited directly to Joseph’s Goal following matching.

When your supporters donate they should receive a confirmation email.  Have them forward you the email so you can keep track of how much you’ve raised.